SpineNation Group - Degenerative Disc Disease

Its_Devo

7d

Just an update: I haven't been able to sit upright, drive or travel since rupturing my L5/S1 disc on 10/11/2018. After 20+ epidurals, RFA, PRP, and even intra-discal mesenchymal stem cell treatment, I was *finally* referred to a surgeon. I have now been "officially" diagnosed with discogenic pain, no radiculopathy. I knew this from the beginning, as I myself am a physician but perhaps because my condition is so rare (and I'm female) it just took the doctors 4 years to arrive at the same diagnosis. I have been referred for a specialized disc nerve ablation procedure. My fingers are crossed. I am not religious but I do pray it will help. My life is but a shadow of what it was before the disc ruptured that day but it has been one hell of an opportunity to practise mental health work and spirituality. If that procedure does not help me be able to sit again, then I will **FINALLY** be able to get a lumbar disc replacement. I started saving up the $ for it 3 years ago, and I'm halfway there now (I am fortunate enough to still be able to run a successful medical practise, just from a recliner and a lapdesk now). Please keep me in your thoughts/prayers/etc. and I will do the same for all of you! I know this group is not very active but I just wanted to put this out there.

<div>Just an update: I haven't been able to sit upright, drive or travel since rupturing my L5/S1 disc on 10/11/2018. After 20+ epidurals, RFA, PRP, and even intra-discal mesenchymal stem cell treatment, I was *finally* referred to a surgeon.  I have now been "officially" diagnosed with discogenic pain, no radiculopathy. I knew this from the beginning, as I myself am a physician but perhaps because my condition is so rare (and I'm female) it just took the doctors 4 years to arrive at the same diagnosis. I have been referred for a specialized disc nerve ablation procedure. My fingers are crossed. I am not religious but I do pray it will help. My life is but a shadow of what it was before the disc ruptured that day but it has been one hell of an opportunity to practise mental health work and spirituality. If that procedure does not help me be able to sit again, then I will **FINALLY** be able to get a lumbar disc replacement. I started saving up the $ for it 3 years ago, and I'm halfway there now (I am fortunate enough to still be able to run a successful medical practise, just from a recliner and a lapdesk now). Please keep me in your thoughts/prayers/etc. and I will do the same for all of you! I know this group is not very active but I just wanted to put this out there. </div>

Save Cancel

mojolvr

22d

Hello everyone. Does anyone else have a condition involving the thoracic spine? I have thoracic radiculopathy from arthritis and bone spurs involving T 7,8 and 9. The T8 spur is sticking into the left-side nerve root. Started having pain in 2018 that goes all the way around my torso right about the "bra band line". It is always a level 3 to 4 on the Wong pain scale with 3 separate episodes that lasted about 6 weeks. They consisted of 24/7pain at a level 8 to 9 that dilbilated me for the duration. I save a kidney stone episode as my 10, lol. Anyway. evidently, this condition is somewhat rare. Very limited information on the subject can be found. Neurosurgeons won't consider surgery unless bowel and bladder function is compromised because paralysis is a major concern, which I understand. At this point, for me, it's injections and gabapenten. Anyone out there with the same condition, I would love to talk with you.

Save Cancel

Group Description

For peeps who are trying to live their life with DDD. Talk with others about their experiences pre- and post-op, learn ways to manage the pain that comes with DDD, and support one another along the way.

Group Rules

Be Kind & Courteous

Everyone on this site is dealing with chronic pain of different sorts, as well as other diagnoses. Any day could be a bad day or a good day. Let's treat everyone with respect and kindness and assume that we are all doing our best but maybe having a bad day. No -isms will be tolerated!

No Hate Speech or Bullying

We want everyone to feel safe here. Bullying of any kind isn't allowed, and degrading comments about race, religion, culture, sexual orientation, gender, or identity will not fly here.

No Unsolicited Advice

If someone posts about their experiences and asks a question or seeks advice, by all means, offer it. But sometimes, we need to vent and commiserate. Please refrain from giving unsolicited advice or telling other members what they should do. Instead, respectfully offer some things that helped you along your journey.

No Promotions or Spam

Our mission is to support our community members by educating, supporting, and empowering them to live their best lives despite their spine issues. Please do not spam our feed or groups with promotions and links to products for profits or your company/practice. You can share products when someone asks for recommendations or advice.

Respect Everyone's Privacy

Being part of groups on SpineNation requires mutual trust. Authentic, expressive discussions make groups tremendous but may also be sensitive and private. Don't share screenshots, speak about members in other forums, or share sensitive information about peers. What happens on SpineNation, stays on SpineNation.

Degenerative Disc Disease

Its_Devo

7d

mojolvr

22d

Group Description

Group Rules

Be Kind & Courteous

No Hate Speech or Bullying

No Unsolicited Advice

No Promotions or Spam

Respect Everyone's Privacy

Group Members

Admin

All Members

Member Requests