SpineNation Group - Medical Mysteries Support Group

Jess

7m

Im looking for answers support. I had lumbar back surgery last april. I had l4 l5 s1 fusion 2 disc replaced and a vertabra repaired. I tried to come off of pain medication and im in so much pain i cant even function. Since my surgery i cant do much of anything. I keep getting told im 32 i shouldnt be in this much pain. Im not sure what to do. Im so angry i feel like my doctor did something wrong. He just said i need ahots now in my si joint. I was never told or warned about anything. I feel he has stolen what little life i had. I googled support groups this is what came up. Any help please anything would be appreciated i dont know what to do from here. I feel like he took my life and left me with having to depend on these pain meds to be ok. Im not ok with that. I dont want pain meds period. But the pain is so bad theres no way with out them. If anyone has ever been in my situation please what did you do. Thank you

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AL

8m

This is a shot in the dark. I want to meet others who have the same pain as me, as I don't believe I am the only one in the world with this....the problem is in 22 years with the pain in my upper back and left neck/spine, no one has met anyone "like" me, and no one has been able to figure it out exactly. I wonder if the problem has to do with my autism. Any suggestions?

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Group Description

This is for individuals who have been struggling to find answers for the causes of their chronic back pain and other symptoms related to mobility and the spine. Ideally, members will offer support and commiserate, share stories of their experiences, and perhaps help group members think of things to ask of their medical providers and caregivers.

Group Rules

Be Kind & Courteous

Everyone on this site is dealing with chronic pain of different sorts, as well as other diagnoses. Any day could be a bad day or a good day. Let's treat everyone with respect and kindness and assume that we are all doing our best but maybe having a bad day. No -isms will be tolerated!

No Hate Speech or Bullying

We want everyone to feel safe here. Bullying of any kind isn't allowed, and degrading comments about race, religion, culture, sexual orientation, gender, or identity will not fly here.

No Unsolicited Advice

If someone posts about their experiences and asks a question or seeks advice, by all means, offer it. But sometimes, we need to vent and commiserate. Please refrain from giving unsolicited advice or telling other members what they should do. Instead, respectfully offer some things that helped you along your journey.

No Promotions or Spam

Our mission is to support our community members by educating, supporting, and empowering them to live their best lives despite their spine issues. Please do not spam our feed or groups with promotions and links to products for profits or your company/practice. You can share products when someone asks for recommendations or advice.

Respect Everyone's Privacy

Being part of groups on SpineNation requires mutual trust. Authentic, expressive discussions make groups tremendous but may also be sensitive and private. Don't share screenshots, speak about members in other forums, or share sensitive information about peers. What happens on SpineNation, stays on SpineNation.

Medical Mysteries Support Group

Jess

7m

AL

8m

Group Description

Group Rules

Be Kind & Courteous

No Hate Speech or Bullying

No Unsolicited Advice

No Promotions or Spam

Respect Everyone's Privacy

Group Members

Admin

All Members

Member Requests