SpineNation Group - Medical Mysteries Support Group

PokerFaceJess

1m

June 3, 2021, I had a surgery to change the batteries in my pain pump. This led to a regeneration of a deeply dormant staph infection that, in less than a day, turned severely septic. 8 days of three different IV antibiotics to try to control the significance infection. June 13, 2021, pain pump was explanted because it had become abscessed in its pocket. F/U MRI showed advanced degenerative joint disease in the L-S juncture, where the leads were still implanted. June 15, 2021, (some of the) leads were removed, all previous fusion hardware (five surgeries' worth!) explanted, and the July 2020 fusion was extended 3 levels. 2 months of PICC line IV antibiotics at home, followed by 3+ months of 1Gm doxycycline per day. MRI last week shows osteomyelitis is STILL in spine, from T7-T9! NOT cleared up by all these abx! I have systemic Candida from all the abx but Infectious Disease dr just ordered more Doxycycline, in spite of it NOT working. I am unhappy, and very ill; what do I do now? 2nd opinion? Please help me

. 6 Comments

<div>June 3, 2021, I had a surgery to change the batteries in my pain pump. This led to a regeneration of a deeply dormant staph infection that, in less than a day, turned severely septic. 8 days of three different IV antibiotics to try to control the significance infection. June 13, 2021, pain pump was explanted because it had become abscessed in its pocket. F/U MRI showed advanced degenerative joint disease in the L-S juncture, where the leads were still implanted. June 15, 2021, (some of the) leads were removed, all previous fusion hardware (five surgeries' worth!) explanted, and the July 2020 fusion was extended 3 levels. 2 months of PICC line IV antibiotics at home, followed by 3+ months of 1Gm doxycycline per day. MRI last week shows osteomyelitis is STILL in spine, from T7-T9! NOT cleared up by all these abx! I have systemic Candida from all the abx but Infectious Disease dr just ordered more Doxycycline, in spite of it NOT working. I am unhappy, and very ill; what do I do now? 2nd opinion? Please help me</div>

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ChiefBacker

5m

Not meant to scare anyone, but maybe take a step back if you haven't been able to find the cause of your current back pain and look at other things that could be causing it.

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Group Description

This is for individuals who have been struggling to find answers for the causes of their chronic back pain and other symptoms related to mobility and the spine. Ideally, members will offer support and commiserate, share stories of their experiences, and perhaps help group members think of things to ask of their medical providers and caregivers.

Group Rules

Be Kind & Courteous

Everyone on this site is dealing with chronic pain of different sorts, as well as other diagnoses. Any day could be a bad day or a good day. Let's treat everyone with respect and kindness and assume that we are all doing our best but maybe having a bad day. No -isms will be tolerated!

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If someone posts about their experiences and asks a question or seeks advice, by all means, offer it. But sometimes, we need to vent and commiserate. Please refrain from giving unsolicited advice or telling other members what they should do. Instead, respectfully offer some things that helped you along your journey.

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Medical Mysteries Support Group

PokerFaceJess

1m

ChiefBacker

5m

Group Description

Group Rules

Be Kind & Courteous

No Hate Speech or Bullying

No Unsolicited Advice

No Promotions or Spam

Respect Everyone's Privacy

Group Members

Admin

All Members

Member Requests